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The On-Air Advocate

Oct 5, 2021

As we continue our VEDS Action Month Series, I am so excited to welcome to the show, Katie Wright, Director of The VEDS Movement. 

Katie Wright was diagnosed with VEDS, or Vascular Ehlers-Danlos Syndrome, in 2017. Her diagnosis provided the answer for the unexplained neck pain she had been dealing with for over a year, which turned out to be a dissected carotid artery. 

Katie's diagnosis inspired her to get involved in advocacy for VEDS. She first started a YouTube channel, and then started a podcast, Staying Connected, featuring stories from other people with VEDS. In 2018, she got involved in research through work with the VEDS Collaborative, and in 2019 she joined The Marfan Foundation to launch a dedicated division for VEDS- now known as The VEDS Movement.

Listen in as Katie shares all about The VEDS Movement and VEDS Action Month.

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