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The On-Air Advocate

Mar 1, 2019

As we continue our rare disease interview series, I am excited to welcome Claire & Linda. 

Claire was born with Auto Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF), a rare genetic kidney and liver disease affecting 1:20,000 newborns. Nearly half of those born with ARPKD/CHF don't survive the first few months of life, and those who do survive face kidney and liver transplants as well as chronic and systemic complications.

Listen in as Claire & Linda share their amazing journey with us, what’s coming up for Rare Disease Day & how you can get involved.