Feb 17, 2021
As we continue our Marfan Awareness Series, I am so
excited to welcome Allison Pullins, Volunteer, The Marfan
Foundation.
Allison Pullins is a healthcare technology
executive with 15 years of industry experience. She has guided and
executed corporate strategy, and built teams across marketing,
sales, product, and customer success.
As COO of MD Ranger, Allison leads the operations
of the company and charts its strategic vision.
Allison serves as President of the Big City Parents
Organization, which helps disadvantaged families access
high-quality early childhood education in San Francisco,
California. She is a member of the Strategic Development Committee
of The Marfan Foundation, an organization that she volunteers for
in many capacities. Allison lives in San Francisco, California,
with her partner and their two children.
Her oldest child James (age five) was diagnosed
with Marfan syndrome when he was two years old. James lives with
multiple heart conditions, including aortic aneurysm, low vision,
and low muscle tone, among other disabilities. He is a bright,
curious child who enjoys math, geography, Star Wars, and music
(particularly grunge rock and hip hop). James inspires Allison to
increase awareness for connective tissue conditions, advocate for
the rights of disabled people, and fundraise for research to
eventually cure these life threatening genetic conditions.
Listen in as Allison shares her perspective and
their journey with receiving the diagnosis of Marfan syndrome for
their oldest son and the impact it has had on their family.