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The On-Air Advocate

Apr 17, 2019

Episode 120 - Autism Awareness & Acceptance Month, I am excited to welcome , Mia-Francis-Poulin, Mother , Advocate & Founder/Host of Mama, Build Your Empire💙

 

Listen in as Mia shares more about her family’s journey navigating through the world of complex medical issues, Autism & sharing her passion & mission of...


Apr 17, 2019

Episode 119 welcomes, Ronda Tyler, Mother, Advocate & Founder of Mari Cerebral Palsy Awareness Foundation.

Listen in as Ronda shares  their families journey with Cerebral Palsy, starting the Mari Cerebral Palsy Foundation & how you can get involved and help raise awareness for National Cerebral Palsy Day...


Apr 17, 2019

As we wrap up our rare disease interview series with Kayla & Andrea Abramowitz of Kayla Cares 4 Kids. 

Kayla Abramowitz is the Founder and CKO (Chief Kid Officer) of Kayla Cares 4 Kids, a 501(c)(3) non-profit organization.

She began the organization, at age 11, by collecting entertainment and educational items to donate...


Apr 17, 2019

As we continue our Rare Disease Interview Series, I am excited to welcome back Dawn Boyesen Veselka, Sadie's Mom & Author of Body Check Journal. 

Dawn’s daughter Sadie suffers from Mixed Connective Tissue Disease including Juvenile Arthritis, Scleroderma, Dermatomyositis and Raynaud's. 

Listen in as Dawn shares her...


Mar 1, 2019

As we continue our rare disease interview series, I am excited to welcome Claire & Linda. 

Claire was born with Auto Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF), a rare genetic kidney and liver disease affecting 1:20,000 newborns. Nearly half of those born with ARPKD/CHF don't survive...