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The On-Air Advocate

Mar 1, 2019

As we continue our rare disease interview series, I am excited to welcome Claire & Linda. 

Claire was born with Auto Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis (ARPKD/CHF), a rare genetic kidney and liver disease affecting 1:20,000 newborns. Nearly half of those born with ARPKD/CHF don't survive...


Mar 1, 2019

As we continue our rare disease interview series, I am excited to welcome Pete & Dede of PetesDiary.com.

Listen in as Pete & Dede share their amazing journey with us, what Pete's Diary is all about, what’s coming up for Rare Disease Day & how you can get involved.

Learn more about Pete’s Story:


Feb 27, 2019

As we continue our Rare Disease Interview Series, I am so excited to welcome Emily Anderson.

Emily is an English major for creative writing at the University of Wisconsin Milwaukee. She recently wrote an article for Milwaukee magazine looking to spread awareness for disability rights because she feels that those rights...


Feb 27, 2019

As we continue our Rare Disease Awareness Interview Series , I am excited to welcome, Kerry Morgan Hughes,M.Ed Harmony 4 Hope Founder and President

Kerry combines her passion for education and music to impact the landscape of Rare Disease. Merging music and storytelling, the mission of Harmony 4 Hope (H4H) is to fuel...


Feb 27, 2019

As we kick off our Rare Disease Awareness Interview Series , I am excited to welcome, Kirsten, Entrepreneur, Founder of online store Graphic Organic Graphic Designer, Chronic Illness Blogger, Chronic Illness & Mental Health Advocate & Denise , MSW, Founder/Life Coach , Chronic Warrior Collective, LLC
(Formerly, Chronic...